The project was a collaboration with Chicago-area hospitals to increase access to public benefit programs and improve health outcomes of children with severe disabilities hospitalized in neo-natal intensive care units.
The SSI Coalition’s direct experience of working with families led to the development of this model demonstration program. Starting with a pilot at Mt. Sinai Hospital, it expanded to a collaboration with three Chicago-area hospitals. A major goal of this demonstration project was to prevent the impoverishment of families with children with significant health care needs. The project was also unique in that it reached families at the point of disability and connected them with critical state and federally funded programs and/or counseled them on services covered by private health insurance and then intervened when families encounter barriers to these programs.