Updates

Communications from SPW

A Sad Day for Health Care in America

Screenshot of final House vote on HR 1628Health & Disability Advocates was disappointed that the House of Representatives passed HR 1628 – The American Health Care Act (AHCA). Despite assurances that the AHCA will ensure better coverage at less cost, the AHCA will instead:

  • Cause an estimated 24 million people to lose coverage
  • Give states the option to remove cost and coverage protections for people with pre-existing conditions
  • Reduce Medicaid funding to all states by $880 billion over the next ten years
  • Increase out-of-pocket costs for seniors

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How Much Medicaid Flexibility Do States Already Have?

Putline map of the statesCongressional proposals have argued that states deserve more flexibility in their Medicaid programs.

But states already have great flexibility in their Medicaid programs.

Every state has its own Medicaid plan, which can be permanently altered. This series of informational briefs seeks to show in clear and simple ways how states can change the payments rates, services covered, benefits and benefit limits, and their cost-sharing in partnership with the federal government. We hope you find them helpful.

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ACA Congressional Outreach

Rep. Peter Roskam, Illinois’ member of Ways & Means, with map of his district
Rep. Peter Roskam, Illinois’ member of Ways & Means

Right now, Congress is weighing the merits of the “American Health Care Act” – the ACA repeal-and-replace bill. The Congressional Budget Office estimates 24 million would lose coverage. These are regular, middle-class people who would be left behind: older adults, people with disabilities, people with complex health needs. People like you and your neighbors. Read our statement

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Understanding Moral Injury

Cartoon explaining moral injurySometimes, the most difficult injury from which to recover is living with one’s memories.

A moral injury is defined as an injury to a person’s moral conscience based upon the act of perceived moral transgression which creates deep emotional pain. The catalyst is often acts of omission or commission, and the resulting trauma impacts one’s psyche due to personal cultural and spiritual values placed on those acts. In the most basic terms, the veteran feels crippling guilt. Continue reading “Understanding Moral Injury”

Our One-pagers on ACA and Medicaid

Young mother with her babyAs you know, the Affordable Care Act is critically threatened. And these threats extend beyond the confines of the ACA to include attacks on Medicaid the overall federal-state healthcare system. Anticipated changes will dramatically affect people’s lives and shift the entire health care landscape.

That’s why we are creating this series of one-pagers, to show in clear and simple ways how the protections of the ACA affect everyday people’s lives in substantial ways.

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Giving Voice to SCI Patients in Their Own Research

Person using a wheelchairEvery time Joe needs routine health care unrelated to his spinal cord injury (SCI), he ends up providing the doctors with a laundry list of things they should be asking him, but don’t. Even though he is in his 30s, Joe doesn’t have a primary care physician. He can’t find one with an accessible office for routine exams; he gets his routine care from the specialist who he’s been seeing for his SCI. He’s starting to give up on trying to find a primary care physician because every time he educates them about how his injury affects his health, he gets a new doctor and has to start all over again. He feels it’s a waste of time and demoralizing, so he’s just stopped looking for a primary care physician.

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What Remains the Same

Trump and Clinton at podiums during the campaignNew leadership in the White House and in Congress always means different ideas and viewpoints for how we conduct the country’s business. But an election doesn’t change the needs that regular people have. We know from experience that the challenges people face today are the very same challenges we faced yesterday, and won’t change because of an election.

A new administration means changes, and we are ready to work with policymakers to mitigate the impact of change on our constituency. We will be using all of the tools at our disposal to make sure that people with complex health needs and disabilities have a voice – whatever systems of care we put in place.

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How Do You Advocate?

Scrabble board with ADVOCATE spelled outOne of the reasons I love the work I do at HDA is that I know that, by training others to be the best clinicians/advocates/medical professionals they can be, I will be helping to impact the lives of so many more people than if I were treating clients myself. When those who attend our workshops feel more empowered to work with a population they may not have engaged with before, I consider this a great success. Continue reading “How Do You Advocate?”

Learning Alternative Therapies for Trauma

OTabletop gardening therapy in progressn September 16, we partnered with the Institute for Therapy through the Arts to host an Experiential Learning Conference in Evanston, Illinois. The conference presented a daylong set of hands-on workshops to help participants understand why art and alternative therapies are so effective for people who experienced trauma.

There were about 50 attendees including ITA staff. They included social workers, counselors, and alternative therapy counselors. All have either worked with a client or currently work with clients experiencing some form of trauma.

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The Real Cost of Governor Rauner’s Vetoes

Last Friday afternoon, Governor Rauner took his hatchet to two important pieces of legislation that would have insured vital social supports for some of Illinois’ most vulnerable citizens. He vetoed HB 5931, which would have guaranteed a $15/hour wage to those who care for people with developmental disabilities, and SB 730, which would have expanded child care for low-income families.

Gov. Rauner. Photo courtesy of Wikipedia
Photo courtesy of Wikipedia

To be fair, the Governor did acknowledge the importance of these services and the sacrifices of those who provide them. But, in the end, he justified the vetoes by saying the State is broke and the bills didn’t provide a funding mechanism. In other words, no child care without a bake sale to pay for it.

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